Group Name: Canadian Organization for Rare Disorders (CORD)

Description: CORD is Canada’s national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.

CORD represents the orphan disorders community in the development of Canadian Orphan Drug Policy, including the proposed Expensive Drugs for Rare Disorders program within the National Pharmaceutical Strategy CORD is working to promote state-of-the-art Newborn Screening in all provinces and territories. CORD is working to ensure Canada’s Clinical Trials Registry works effectively for those with rare disorders. CORD is committed to increasing access to genetic screening and genetic counseling for all rare disorders.

Where: 151 Bloor Street West, Suite 600 | Toronto, ON M5S 1S4

When: Call for further information.

Contact: 416-969-7464 | 1-877-302-7273 | info@raredisorders.ca | www.raredisorders.ca

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