Group Name: Ontario Rett Syndrome Association
Description: The Ontario Rett Syndrome Association (O.R.S.A.) is a volunteer, not-for-profit charity for parents, caregivers, researchers, medical professionals and other interested support agencies and individuals. O.R.S.A. became incorporated in 1991. Its Board of Directors is comprised of parents and caring citizens. O.R.S.A. provides information through a website, a newsletter and conferences. Support is provided to families regionally. The association funds Canadian research projects, three Rett Syndrome Clinics, a resource centre and the Canadian Rett Syndrome Registry. O.R.S.A. advocates to the needs of individuals with Rett syndrome and their families provincially and nationally.
Their outreach family support program puts families in contact with each other for mutual support outside of the regular meetings.
Where: P.O. Box 50030 | London, ON N6A 6H8
When: Meetings are held every 2 to 3 months. Information is sent to members re: time and location. Meetings are available to anyone interested, including professionals. There is a yearly membership fee of $25.00 per family. Call for more information.
Contact: 519-474-6877 | www.rett.ca