Group Name: Canadian Pemphigus and Pemphigoid Foundation
Description: The Canadian Pemphigus and Pemphigoid Foundation’s purpose is to help pemphigus and pemphigoid patients and their caregivers improve the quality of their lives. To do this, we work with patients and their caregivers, the healthcare community, and other stakeholder organizations to ensure compassionate and caring support programs, deliver innovative educational activities and support relevant research initiatives.
Support groups bring people together for many reasons: For example, they can provide an opportunity to:
- Share your feelings about living with your condition;
- Discuss ways to communicate with your friends and colleagues about the disease,
learn about the latest treatments and health management strategies, and,
- Equip yourself with information to help educate healthcare providers about your disease (Yes many healthcare professionals have never seen a “real” case of pempihgus or pemphigoid!).
Where: Please contact for more information on support meetings.
Contact: Karen Wong firstname.lastname@example.org | Rena Sky email@example.com | firstname.lastname@example.org | www.pemphigus.ca