Group Name: Sotos Syndrome Support Association of Canada
Description: SSSAC/ACESS was incorporated January 2002 to provide educational and emotional support to Canadian families of persons with Sotos syndrome and to provide a better understanding to parents, government and the public at large of Sotos syndrome (Cerebral Gigantism) through education.
Since a diagnosis of Sotos syndrome is typically made in the first few years of life, it can be very trying for families as they try to deal with the diagnosis, determine what they can expect for their child, and learn what they can do to best support their child’s development. SSSAC/ACESS endeavours to support families by providing them with access to information by way of handbooks, pamphlets, Internet, public lectures, discussions etc., and with emotional support by facilitating discussions with other parents who have been through similar experiences.
Where: Montreal, Quebec
When: Please e-mail for more information on support. **Include SSSAC / ACESS inquiry in the subject line.
Contact: firstname.lastname@example.org | www.sssac.com | sotossyndrome.org