Group Name: The Canadian Amyloidosis Support Network
Description: The Canadian Amyloidosis Support Network, Inc. is a not-for-profit, all volunteer organization, formed by amyloidosis patients and family members of amyloidosis patients. Our Support Network refers to our commitment to making a positive difference in the lives of patients and families.
We operate a toll free patient support line (our toll free number). On the internet, our website offers:
- Patient education
- Support group listings and registration
- Information on awareness campaigns
- Fundraising efforts
- Medical and physician referrals
- Research articles for the medical community
- Patient and family stories
- Links to other amyloidosis support resources around the world
The support network can help patients, caregivers and families stay informed about survivorship concerns and quality of life issues. All of our activities are operated entirely by unpaid volunteers. Our major source of income is from contributions made at our website, fundraisers and patient memorials. This money is used entirely to support our mission and goals including the telephone line and website.
Where: The Empire, 41 King William Street, Empire 202 | Hamilton, ON L8R 1A2
When: Meetings take place twice yearly usually in the spring and fall.
Contact: 1-877-303-4999 (Patient Support Line) | Marsha 647-351-0532 | firstname.lastname@example.org | email@example.com (En Francais) | www.thecasn.org