All posts in “physical health”

The Myalgic Encephalomyelitis Association of Ontario

Group Name: The Myalgic Encephalomyelitis Association of Ontario

Description: The Myalgic Encephalomyelitis Association of Ontario (MEAO) is a volunteer-run organization that has been serving the community since 1991. They offer information and support to people living with the illnesses, as well as family members, physicians and other professionals, and the general public.

Please visit their Ontario locations page to find a support group near you for:

  • ME Myalgic Encephalomyelitis
  • CFS Chronic Fatigue Syndrome
  • FM Fibromyalgia Syndrome
  • MCS/ES Multiple Chemical Sensitivities/Environmental Sensitivities

Where: 402-170 The Donway West | Toronto, ON M3C 2G3

Contact: 416-222-8820 | 1-877-632-6682 | www.meao.ca | info@meao.ca

Pulmonary Hypertension Association of Canada – Toronto Chapter

Group Name: Pulmonary Hypertension Association of Canada – Toronto Chapter

Description: The Toronto Chapter was formed by a volunteer group of patients, families and caregivers in the Fall of 2008. Patients found each other through a pulmonary hypertension group on Facebook and got together at a local coffee shop. They shared and exchanged stories of how PH has affected their lives and how they deal with it. It was amazing to see how each person had a different story yet they could still relate to how each other felt. Strong bonds were immediately formed.

The Toronto Chapter is devoted to helping improve the lives of those living in the GTA who are affected by Pulmonary Hypertension. We meet on a regular basis to share our experiences and support each other. *** These are personal numbers so please do not call before 9 a.m. or after 8 p.m.

Where: Toronto, ON

When: The Support Group meets once a month (usually the first Saturday afternoon of the month). Their meetings are open to everyone, whether you are a patient, caregiver, family/friend or just someone who is interested to learn more about PH. Call for more information.

Contact: Jeannie 416-499-1321 | Ruth 905-775-3686 | loretta@phatoronto.ca | info@phatoronto.ca | www.phatoronto.ca

National Eating Disorder Information Centre

Group Name: National Eating Disorder Information Centre

Description: Their objective is to provide accurate, up-to-date information on eating disorders and to provide appropriate treatment referrals. Our Centre supports and helps those suffering from anorexia nervosa and/or bulimia nervosa to normalize their eating, gain a further understanding of how the eating disorder is developed and perpetuated, and to encourage them to seek treatment if they are not currently seeing a professional. They also provide written information on eating disorders and food and weight preoccupation; Canada-wide listing of treatment services and resources; lectures and workshops for schools, community groups, professionals etc.; sponsor of national Eating Disorder Awareness Week (EDAW); and training in volunteer work and support services.

Where: 200 Elizabeth Street | Room 7ES-421 | Toronto, ON M5G 2C4

When: Those interested should call the centre for additional resources. There is a $15.00 fee for individuals and $20.00 for organizations to become members of the Centre, which provides a newsletter five times a year.

Contact: 416-340-4156 | 1-866-633-4220 | nedic@uhn.on.ca | www.nedic.ca

Malignant Hyperthermia Investigation Unit

Group Name: Malignant Hyperthermia Investigation Unit

Description: The Malignant Hyperthermia Investigation Unit (MHIU), at Toronto General Hospital, Toronto, Canada has worked on providing care and diagnostic testing to Malignant Hyperthermia patients. The Perioperative Interactive Education (PIE) group is a team of medical artists and researchers dedicated to creating visually-based aids for medical teaching.

Their mission is:

  • To advise and provide resources to increase knowledge of MH among Canadian health practitioners and patients,
  • Act as a referral center to assess “at risk individuals” and provide them with genetic counseling, genetic testing, and CHCT testing,
  • To create and maintain an MH registry of the Canadian MH population,
  • And to perform scientific research on MH.

Where: Toronto General Hospital | 200 Elizabeth St. Rm. ES3-323 | Toronto, ON M5G 2C4

When: Call for more information.

Contact: 416-340-3128 | pie.med.utoronto.ca

Irritable Bowel Syndrome Group

Group Name: Irritable Bowel Syndrome Group (IBS Group)

Description: The Irritable Bowel Syndrome Self Help and Support Group is a patient led and patient governed organization dedicated to helping everyone who suffers from IBS and other digestive health disorders, through patient communication, support, symptoms, causes, treatment, accurate information and education.

Where: P.O. Box 94074 | Toronto, ON M4N 3R1

When: Call for more information.

Contact: ibs@ibsgroup.org | www.ibsgroup.org

Infertility Network

Group Name: Infertility Network

Description: The Infertility Network (IN) is an independent, registered Canadian charity which strives to:

  • Provide support and information to help people make informed choices about their family-building options.
  • Advocate for reform of gamete donation practices so that they may better meet the needs of offspring for medical and identity purposes.
  • Develop public understanding and awareness of infertility, reproductive technology and related issues.

*** There is no longer a monthly support meeting.

Where: 160 Pickering Street | Toronto, ON M4E 3J7

Contact: www.infertilitynetwork.org | info@infertilitynetwork.org

Huntington Disease Resource Centre

Group Name: Huntington Disease Resource Centre

Description: The HD Resource Centre provides a flexible program of support services for the benefit of individuals and families coping with Huntington disease (an inherited brain disorder). Its purpose is to assist families and health care professionals in dealing with the many different needs and concerns encountered over the course of the disease. They provide support groups, educational talks for professionals, and direct short-term counselling for families. This chapter overs Toronto & York Region for Ontario. There are no fees required to attend the meetings.

Where: 151 Frederick Street, Suite 400 | Kitchener, ON N2H 2M2

When: Call for more information.

Contact: Rozalia Andrejas 905-787-1645 | 1-877-573-7011 | info@huntingtonsociety.ca

GBS/CIDP Foundation of Canada

Group Name: GBS/CIDP Foundation of Canada

Description: Their commitment is to support those touched by the GBD/CIDP disorders so that every patient experiences an early diagnosis, proper treatment, & the opportunity for a full recovery. GBS/CIDP have liaisons across Canada who can give support, educational presentations. We offer support group meeting and one on one support for both patient and families. Their newsletter comes out twice a year – spring and fall. We have a National Conference in Toronto every two years.

Where: P.O. Box 42016 | 2851 John St. | Markham, ON L3R 5R7

When: Call for information about meetings.

Contact: 905-640-0073

Epilepsy Ontario

Group Name: Epilepsy Ontario

Description: Epilepsy Ontario is the voice of epilepsy in the province. Since 1956, they have been serving the province as a registered health charity incorporated under the statutes of Ontario as a non-profit and non-governmental organization. They aim to raise public awareness and improve education through publications, conferences, outreach initiatives and our website.

Epilepsy Ontario is dedicated to promoting independence and optimal quality of life for children and adults living with seizure disorders. Through a network of local agencies, contacts and associates across the province, Epilepsy Ontario reaches out to people with epilepsy and their loved ones. They do this by providing:

  • client services including counselling and referrals,
  • information
  • education and
  • advocacy services.

Where: 803-3100 Steeles Avenue East | Markham, ON L3R 8T3

When: Call for more information.

Contact: 905-474-9696 | 1-800-463-1119 | info@epilepsyontario.org | www.epilepsyontario.org

Epilepsy York Region

Group Name: Epilepsy York Region

Description: Epilepsy York Region is a non-profit, community-based, multi-service agency. Founded in 1988, it now provides support, education and advocacy to an estimated 7,300 to 14,600 people with epilepsy and their families in York Region. Our organization is here because we strongly believe that we can make positive changes and provide a supportive environment for those living with epilepsy and seizure disorders. We believe that we can achieve the support needed through our efforts of public education and awareness.

Epilepsy York Region provides a warm, safe, and mutually-supportive environment to those affected by a seizure disorder. A support group is a place for people to give and receive both emotional and practical support and information to one another. It can be comprised of people with common interests or experiences. Many support groups are diagnosis specific and serve several purposes for each individual. People can meet, socialize, or simply gather to share ideas, personal stories or experiences, issues concerning epilepsy or even coping strategies with one another. We make efforts to provide meetings for:

  • Parents of children living with epilepsy
  • Adults with epilepsy
  • Youth or young adults

Where: 11181 Yonge Street, 2nd Floor | Richmond Hill, ON L4S 1L2

When: Call for self-help meeting dates, times and locations.

Contact: Leslie Davidson 905-508-5404 | ldavidson@epilepsyyork.org | www.epilepsyyork.org/

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