All posts in “sickle cell”

Sickle Cell Awareness Group of Ontario

Group Name: Sickle Cell Awareness Group of Ontario (Youth Group)

Description: Sickle Cell Awareness Group of Ontario also known as SCAGO. It started on June 14th, 2005 as Seed of Life Philanthropic Organization in memory of a brave young man- Sunday Afolabi. It has significantly contributed to the health and well-being of many Canadians tirelessly educating the community about Sickle Cell Anemia and its subsequent poverty; focusing more on how the incidences of these ailments could be reduced within the At- Risk communities. Sickle Cell Anemia is a severe genetic blood disorder that affects the red blood cells.

The group is open to youths aged 17-25 years old living with sickle cell disease. Program mandate is empowerment of young adults with sickle cell disease so as to ensure that their voices are heard. It is imperative that this age-group understand effective advocacy. SCAGO provides the opportunity to learn various skills that will ground these young adults in the adult world. The group also provide the prospect for the participants to interact with each other. This group was established in partnership with the Hospital Sick Kids in 2010.

Where: 235-415 Oakdale Road | North York, ON M3N 1W7

When: Please contact for details on meetings.

Contact: Tasha Addo 647-706-5839 | Ewura-Ama 416-831-4490 | sicklecellanemia.ca | secretary@sicklecellanemia.ca

Sickle Cell Awareness Group of Ontario

Group Name: Sickle Cell Awareness Group of Ontario

Description: Sickle Cell Awareness Group of Ontario also known as SCAGO. It started on June 14th, 2005 as Seed of Life Philanthropic Organization in memory of a brave young man- Sunday Afolabi. It has significantly contributed to the health and well-being of many Canadians tirelessly educating the community about Sickle Cell Anemia and its subsequent poverty; focusing more on how the incidences of these ailments could be reduced within the At- Risk communities. Sickle Cell Anemia is a severe genetic blood disorder that affects the red blood cells.

The SCAGO Adult Peer Support Group is a continuous entry group (i.e., an open group). A continuous entry group may run for a specific number of months or be ongoing. Membership fluctuates as participants may join or leave the group at any time. Each session may feature a predetermined topic for discussion or sessions may be left open to address the individual needs of participants. Discussions flow easily and giving and receiving support is equally shared at each meeting; thus gaining insights and making suggestions more spontaneous. The peer support group works as a unit.

Where: 235-415 Oakdale Road | North York, ON M3N 1W7

When: Please contact for details on meetings.

Contact: Ms. Verna Lisi & Mr. Sherman Moore 647-351-1099 | sicklecellanemia.ca | secretary@sicklecellanemia.ca

Sickle Cell Awareness Group of Ontario

Group Name: Sickle Cell Awareness Group of Ontario (Peel region)

Description: Sickle Cell Awareness Group of Ontario also known as SCAGO. It started on June 14th, 2005 as Seed of Life Philanthropic Organization in memory of a brave young man- Sunday Afolabi. It has significantly contributed to the health and well-being of many Canadians tirelessly educating the community about Sickle Cell Anemia and its subsequent poverty; focusing more on how the incidences of these ailments could be reduced within the At- Risk communities. Sickle Cell Anemia is a severe genetic blood disorder that affects the red blood cells.

Parent Meet/Support Program
It is a program popularly referred to as Parents support program and designed for parent or parents of children living with SCD. It focuses on their apprehensions and provides recommendations to alleviate concerns and stress while improving their psycho-social health.

Where: 235-415 Oakdale Road | North York, ON M3N 1W7

When: Meetings Coordinated by Lillet Yakubu are for the Peel region. Please contact for more details.

Contact: Lillet Yakubu 905-738-1161 | sicklecellanemia.ca | lilliflowers@hotmail.com

Sickle Cell Awareness Group of Ontario

Group Name: Sickle Cell Awareness Group of Ontario (Toronto)

Description: Sickle Cell Awareness Group of Ontario also known as SCAGO. It started on June 14th, 2005 as Seed of Life Philanthropic Organization in memory of a brave young man- Sunday Afolabi. It has significantly contributed to the health and well-being of many Canadians tirelessly educating the community about Sickle Cell Anemia and its subsequent poverty; focusing more on how the incidences of these ailments could be reduced within the At- Risk communities. Sickle Cell Anemia is a severe genetic blood disorder that affects the red blood cells.

Parent Meet/Support Program
It is a program popularly referred to as Parents support program and designed for parent or parents of children living with SCD. It focuses on their apprehensions and provides recommendations to alleviate concerns and stress while improving their psycho-social health.

Where: 235-415 Oakdale Road | North York, ON M3N 1W7

When: Meetings Coordinated by Gloria Chukwu are for the Toronto Central region. Please contact for more details.

Contact: Gloria Chukwu 647-997-9277 | sicklecellanemia.ca | Gloria.chukwu@tcdsc.org

Sickle Cell Association of Ontario

Group Name: Sickle Cell Association of Ontario

Description: They are a volunteer based non-profit charitable organization run by volunteers since 1981. They provide support, counseling and education workshops, seminars and annual conferences to increase public awareness. Their main goal is to help and work with individuals and families affected by sickle cell disease, to enhance the quality of life of patients. We are fully funded by the generosity of donors, and always welcome volunteers who want to help us further our mission.

Whilst they do not have formal support group meetings, they are able to put families in touch with each other for mutual support.

Where: 3199 Bathurst Street, Suite 214 | Toronto, ON M6A 2B2

When: Call for more information.

Contact: 416-789-2855 | sicklecell@look.ca | www.sicklecellontario.ca

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